Emma McVey has discussed her and fiancé Gaz Beadle’s daughter Primrose’s illness, revealing doctors still don’t know what is wrong with her.
The 27 year old gave birth to her and former Geordie Shore star Gaz’s second child in December, but she was soon back in hospital with complications.
Gaz, 31, and Emma have documented their many trips to hospital with their little girl following her birth, with the model now opening up on the mystery illness.
Primrose is unable to pass stools naturally, which initially left doctors fearing she had Hirschsprung’s disease, but they are still trying to figure out what is wrong.
Hirschsprung disease, also known as HSCR, is a birth defect caused by the absence of nerve cells named ganglions in the bowel of a child.
(Image: Instagram/Gaz Beadle)
This causes the muscles in the bowels to lose their ability to move stool through the intestine.
She is prescribed medication such as lansoprazole, SMS alfamino and movicol. Primrose also has botox injections to relieve her symptoms.
Explaining how the current coronavirus crisis is effecting Primrose’s mystery illness, Emma said: “I didn’t want to leave the house but she’s gone for three days without going to the toilet and so she’s blocked herself up and refused feeds.
(Image: Instagram/Emma McVey)
“She’s also got acid reflux as well. The osteopath always relaxes her and I take her when she’s on a bad turn.
“We’ve got a lot of problems with her. She’s got hospital appointments coming up but everything is up in the air.
“This is why I’m even more anxious because she’s on medication and a special formula. Her Botox will start to wear off in the next four weeks.
(Image: Gaz Beadle/ Instagram)
“If she can’t have it she won’t be able to go to the toilet. My anxiety is through the roof with it.
“They can’t give us a worse case scenario. The NHS is just mayhem at the minute. I just don’t know what’s going to happen.
Opening up on the strain it has put on her and Gaz’s relationship, she continued to tell The Sun Online: “You always turn to the person closest to you and snap.
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Emma McVey and Gaz Beadle
“But having sick children has made us stronger because we went through a major rocky patch when Chester was born.
“I sometimes have really down days and so does Gary too. You lose a lot of your life. We didn’t get a normal, easy baby — even they can be a strain on a relationship never mind a baby that never sleeps, is sick and no one can look after so you can have an hour off.
“You see your child constantly crying, but then see your friends with normal babies who don’t have the problems we do.
“But because me and Gary came through the other side it’s made us so much stronger. I feel like we’ve got such a strong family unit because we spent so much time as a family.”
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